Health Information, Security & Identifers in the context of Managing Epilepsy
Description of management of Epilepsy Hospital, Long term residential care, GP, Patient, Careers, Tele-medicine. Treatment & Monitoring; http://www.epilepsy.com/EPILEPSY/treatment
An Epilepsy Patient JourneyDiagram
- New onset epilepsy / suspected epilepsy
- Seen by GP ?C started on Anti Epileptic Drugs (AEDs)
- No effect or side effects (6 months)
- Referred to specialist, database, ordered test, imaging,
- EEG and tests
- change of medication
- Long term residential care:
- home care: social, community
GP referral.anuual review.
Epilepsy Treatment:Antiepileptic Medication
Generally the epilepsy treatments starts from taking anti-epileptic medication, majority of people will have their seizures controlled by antiepileptic medication.
Same like other medications, antiepileptic medication can have some unwanted side effects which includes drowsy, rashes, nausea and unsteadiness.Surgery
Surgery has been used as a alternative way for people whose epilepsy cannot be controlled by antiepileptic medication. It involves surgically remove the parts of brain which producing the seizures. It has been used for over centuries. Unfortunately there is no guarantee of success of the surgery. A detailed pre-surgical evaluation including various tests (EEG, MRI, PET, telemetry etc) normally will take place to weigh the risks against the benefit towards surgery. Due to development of new surgical techniques and diagnostic method, more procedures has been done than before, and successful rate has been significantly improved.Vagus nerve stimulator (VNS)
Vagus nerve stimulator is a implantable device used for treatments of epilepsy for those people who failed to respond to antiepileptic medication and for those who are not suitable for surgery. Typically it is done by a hour long surgery by implanting a small devices in near to left collar bone. Then the devices is attached to vagus nerve, by sending electronics to the brain, thus reduced possibilities of having seizure activities. The mechanism is similarity to heart pacemaker. Some people respond well after implantation and achieve quite good result of seizure control, however, the devices is not working for everyone, some may experience complications from device insertion. Most of people will continue on antiepileptic medication.Ketogenic Diet
Ketogenic Diet is a special diet which has been used for children who are not respond well to antiepileptic medication. It is a high fat, low carbohydrate diet which needs to be carefully monitored and reviewed by dietician. It needs a lot of self-controlled from both parents and children to help to maintain the diet. Some of children may achieve totally seizure free, some may have seizure well controlled. The mechanism how this diet works is not so sure.Complementary treatments
There are varieties of complementary treatments have been used for control of epilepsy, e.g. aromatherapy, art therapy, herbal therapy, most of them worked on reduce stress and provide relaxation.Chinese medicine
Epilepsy MonitoringEpilepsy Diary
Keep a record of seizure activities is very important as it provides important information for doctor to make correct diagnose and continues monitoring. A basic epilepsy diary should record at least date and time of onset of seizure, awake/asleep, any triggers, duration of the seizure, brief description of seizure activities and recovery period.Epilepsy tele-monitoring
Tele-monitoring involves remotely monitoringEpilepsy Sensor
The Epilepsy Sensor consists of a sensor mat, controller and radio transmitter. The sensor is placed underneath a foam mattress or mattress cover (if using a spring mattress) and monitors tonic-clonic seizures. Upon detection of such a situation an alarm call will be raised to the monitoring centre to alert a carer and to ensure appropriate action can be taken.Implantable epilepsy monitor
The implantable epilepsy monitor is a personal epilepsy seizure warning system which includes an implantable monitor to detect abnormal brain activities, an external warning unit to send warning to patients when seizure is likely to happen.(Piccone, 1986)
Some people may feel disclosure of their epilepsy status could be a dreadful experience, however, the employer could be as supportive as it could be, as long as the people having epilepsy could approve they have the abilities, skills and experience to be capable as any other people to completed work. Also, any discrimination is against law. There are certain safety measures has to follow at work.Family
As nobody is living totally isolated, when a person has epilepsy, the whole family experience, parents, spouse/partner, siblings, it is a huge impact to the family to accept the fact and make proper adjustment to the changes may involved.Alcohol
Having epilepsy should not stop people from drink alcohol as long as it has been consumed the moderate amount. However, certain antiepileptic medication will interact with alcohol thus reduced effectiveness of seizure control. Some people may experience worsen seizure onset after excessive drinking.Travel
Before traveling, people with epilepsy should make sufficient preparation including meeting up GP, stock up extra antiepileptic medication, carry medical alert card, consider proper insurance coverage.Sports
Epilepsy does not prevent people from participating in most leisure activities. If an activity is considered potentially risky, it??s best assessed on an individual basis. Activities may be able to be adapted, or additional safety precautions put in place, to reduce the risk to an acceptable level.Driving
Under current Irish legislation, people with epilepsy will be able to drive provided the person has been free of seizures for one year and is certified fit to drive by a doctor.Pregnant
It is very important for women with epilepsy who are planning to become pregnant to plan ahead. The doctor may altered the antiepileptic medication to lower risk group and prescribed high dose of Folic Acid.
PICCONE, V. A. G. B., STATEN ISLAND, NY, 10314), PICCONE, JOHN N. (377 GANSVOORT BLVD., STATEN ISLAND, NY, 10314), PICCONE, LOUIS A. (377 GANSVOORT BLVD., STATEN ISLAND, NY, 10314), LEVEEN, ROBERT F. (312 LOMBARD ST., PHILADELPHIA, PA, 19147), LEVEEN, ERIC G. (3-3 WOODLAKE RD., ALBANY, NY, 12200). 1986. Implantable epilepsy monitor apparatus. United States patent application 4566464.